It is hard to believe, but there are NO European Guidelines yet! Every child with Tyrosinemia type 1 has the right to get the proper treatment, don’t they?
Now we are fundraising to set up European Guidelines for Tyrosinemia type 1. EUR 100.000,- is needed!
A team of professionals (metabolic paediatricians, dieticians and psychologists) from Europe will set up a course of treatment that will be available for ALL paediatricians. This also means that the paediatricians who are not experts in this rare disease, can still give the correct treatment to their patients.
By setting these European Guidelines, the treatment of all patients will improve and they will have fewer complications to deal with.