General terms and conditions of (March 2019)

The owner of this website is the Tyrosinemia Foundation. Everyone who uses the site of the Tyrosinemia Foundation, for whatever reason, agrees with the general terms and conditions below.

The Tyrosinemia Foundation follows the new General Data Protection Regulation (GDPR), the Privacy statement and Cookie statement.

The website is World in WordPress, run by the company 2LINKit. The Mollie Foundation payments (execute/monitor?) payments received by donations through the website or newsletter.

The Tyrosinemia Foundation’s goal is to improve the treatment of all Tyrosinemia type 1 patients worldwide. The foundation is established in The Netherlands and registered at the Chamber of Commerce.  As such, Dutch law applies.


The Tyrosinemia Foundation is not liable for direct or indirect damage of any kind, caused by using the website or given information, including the damage or loss of information, damage of hardware or programs.


Tyrosinemia Foundation commits respect of texts, pictures, other graphics, business names, trademarks and logos.

The copyrights, business names rights and/or other kind of intellectual ownership rights is founded by the company who uses the material or right to protect. When pictures, illustrations or other graphic material are uploaded on the website of by a person who starts a campaign, then that person has to respect the copyright of third parties. The person who starts a campaign indemnifies the Tyrosinemia Foundation for claims by third parties not respecting copyright.


All personal information received by electronic correspondence will be addressed with the greatest care by the Tyrosinemia Foundation.
The Tyrosinemia Foundation will not disseminate your personal information to others (this excludes any legal obligations).


Our website uses Google Analytics, a website analysis service offered by Google. We use this service to understand how visitors use our website.

If Google is legally obliged, Google or third parties working for Google will share this information. We, the Tyrosinemia Foundation, do not have any influence. All information collected by Google will be anonymised as much as possible. Your IP address will not be given. The information Google gets will be saved on servers in the United States. Google complies with the Safe Harbor principles and joins the Safe Harbor program of the Department of Commerce in the USA. This means there is an appropriate protection level for the use of eventual personal information.

Read Google’s privacy policy for more information, as well as Google’s Analytics privacy policy.

If you want to block Google Analytics, download ‘’here’’ the opt-out plugin. With this plugin, your visit to the website will not count for statistics that Google Analytics uses.

Contact & digital Newsletter

If you have any questions or require further information, this can be done using the contact form.
Therefore, we will use your e-mail address and sometimes your name.

You can subscribe to the digital newsletter. In this newsletter, you can read the results of on going research and campaigns. You can end the subscription anytime. Every newsletter contains a link to unsubscribe.


The following information of donors who transfer money to the Tyrosinemia Foundation is known: name, bank account holder, IBAN, amount and sometimes, description.

The information of the donors who make a donation by using the donor button on the website or newsletter, are e-mail address and if given, your name. The Mollie Foundation payments carries out the payment orders.  The Tyrosinemia Foundation is not responsible for Mollie Foundation payment services. Together with the donation, the donor can include a gift for transfer costs. The transfer costs depends on the amount of the donation and payment methods.

Personal information

You have the right to see, correct or delete your personal information. For this, you can apply, sending an e-mail to:
Tyrosinemia Foundation will reply to your request as soon as possible and within four weeks.


The Tyrosinemia Foundation protects your personal information seriously and will take appropriate action to reverse malpractice, loss, unauthorized access, unintended disclosure and unauthorised changes. If you think your personal information is not protected enough or malpracticed, you can send an e-mail to

Final comment – renewal and current version
The General Terms and Conditions will be renewed by changing the website or law. You will always find the most current version of the General Terms and Conditions, Privacy and Cookie statement on our website.