support a campaign

by donating money you make it possible to fund the needed research into the disease tyrosinemia. Donate now and help the children!

Fundraising to optimise a medicine

During the Stofwisseltour on October 2nd, Joris and his friends: Lisanne, Suze, Tine, Greg, Haije, Louk and Sander will cycle between 50 - 100 km to fundraise money for ongoing research. The Dutch Centre of Expertise for Phenylketonuria and Tyrosinemia, at UMCG (Groningen, The Netherlands), previously has shown that phenylalanine supplementation in Tyrosinemia Type 1 patients can prevent low phenylalanine concentrations. However,…

€505 of €1,500 raised

European guidelines

It is hard to believe, but there are NO European Guidelines yet!
Every child with Tyrosinemia type 1 has the right to get the proper treatment, don’t they?
 Now we are fundraising to set up European Guidelines for Tyrosinemia type 1. 
EUR 100.000,- is needed! A team of professionals (metabolic paediatricians, dieticians and psychologists) from Europe will set up a course…

€30,595 of €100,000 raised

Fund research

... Read more »